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The Wyse Family

Baby Kash

Scroll down to see updates as the Wyse family progresses in their CDH Journey! (All updates are written and given by parents with consent)

Update 5/1/24

On January 22, 2024 the lives of Brionnah and Kurtis changed in a significant way. While attending their routine 20 week Ultrasound for their first baby Kash, the attending doctor found an abnormality. He wasn’t sure whether it was CPAM or CDH and asked if the couple was comfortable transferring care to the University of Michigan, who would be more equipped to handle this prognosis. Three days later the team at the University of Michigan consulted and identified baby Kash to have severe Right sided Congenital diaphragmatic hernia. Within the next month they would come to find out Kash’s LHR was roughly 20%, while the good news was his Echo was clear and there were no other genetic factors at play. This would be the start of the journey for us seeking care from the well accredited John Hopkins Children’s Hospital in St. Petersburg, FL. 

We are currently relocated down to St. Petersburg, FL to John’s Hopkins All Children’s Hospital for our scheduled C-Section at the end of the month. Coming down to JHACH has been a blessing for our baby and birth since he has severe R CDH. Dr. Kays gave us so much hope while also being optimistic in our journey. We went from a 50% survival rate to 90% here and while there could be complications with how severe it is and every case is different we are so grateful for a greater chance of success. 

This grant would be such a blessing to our family as we had to relocate 17 hours to provide the best care we could find for our baby. My husband cannot work remotely so while taking time off we are limited to resources as well as we have a home, dogs and cats back at home that need cared for. This grant helps elevate so much stress from our lives and allow us to focus on Baby Kash and his CDH journey and being there for him every moment we can. 

The Wyse Family
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