The Davis Family

Scroll down to see updates as the Davis family progresses in their CDH Journey! (All updates are written and given by parents with consent)

Initial Backstory

Lachlan was born via induction/emergency c section on 5/5/2025. He is diagnosed with left sided CDH Type D with his case being severe due to 40% of his liver in his left chest, stomach, large intestines, small intestines and spleen that migrated to his upper left chest cavity. He has the smallest set of lungs this medical team has ever seen. He is stable and a care plan has been put in place via Dr. Kays and team with John Hopkins All Children's Hospital of St. Petersburg, FL. Due to short notice relocation, I have spent money that I did not have. Nonetheless I will do what is needed for Lachlan within my limits and beyond, but the financial burden of relocating while still maintaining our home in St. Augustine is mounting. For me as mom, CDH has been the most difficult emotional journey I have ever encountered in this lifetime. I have been in therapy to assist the navigation of this situation while trying to continue to maintain a calm lifestyle for my other three children ages 8, 6, and 4. Right now, I am battling my mental health and financial acumen while keeping faith and hope in Lachlan's diagnosis/prognosis. This grant will help keep things afloat given we have been in St. Petersburg going on 4 months.

Update 8/27/2025

Lachlan is recovering from his Nissen/G tube surgery. Feeds have been a struggle, he has had severe reflux based on his upper GI scan. We will be working on his feeds and increasing volumes to gain proper weight. Wish us luck!

Update 9/30/2025

When life gets discouraging I focus on what is happening around me. My baby boy is alive, I feel him everyday, love on him every second, and thankful for the now💙

Update 10/31/2025

We’re in the count down! 3 more weeks tentatively! My baby has shown true resilience and his strength gives me all the feels I need. This journey been tough for the both of us but GOD! We are rooming in this coming week . Something I was nervous for but in this day I feel like an RN myself. No one can care for him like his mama! I’m nervous about his introduction to his siblings but that will prevail. 4 children will be a new normal for my day to day but I can’t wait. I know there are more steps to finalize for his outpatient care but at this point what can I not handle? Discharge will be a day to celebrate!