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The Metayer Family

Baby Jamir

Scroll down to see updates as the Metayer family progresses in their CDH Journey! (All updates are written and given by parents with consent)

I am a mother of 3 about to be 4 now with baby boy. None of my other children had this diagnosis so it came as a complete shock and because it’s so rare I had never heard of it until my baby got diagnosed at our 20 week scan. It has been really hard and emotionally and mentally draining at times. His CDH is on the right side so his is even more rare. At first I was really devastated and confused as to why this was happening I kept blaming myself because I thought maybe this was my fault and something I did to cause it. But now I’m very hopeful and I know there’s a reason why god chose me to be his mom and to go through this journey with him. 

Your grants will really help me and my family as relocating has been financially a struggle for me with not being able to work and not knowing exactly when I will be able to go back to work. So once again I really am thankful and I appreciate it. 

Update 2/21/24

Baby Jamir was born 2/20/24 at 5:29. He weighs 7 pounds 5 ounces. He has Right side CDH and we are currently waiting for him to stabilize before his repair surgery. Overall he looks good, please continue to pray for us as this has been and still is an overwhelming journey for us. 

Update 3/2/24

Jamir had his surgery 2/24/24 and so far is recovering well. Thank you for your prayers support and encouragement.

Update 3/28/24

Baby Jamie has been doing great! He is now on high flow and working on gaining weight and growing. Soon we will be working on bottle feeds. We don’t have a discharge date as of yet but so far baby Jamir is making great strides! 

Update 4/26/24

Jamir is doing great and hopefully we are on our way to being discharged he is on room air now and working on bottle feedings. 

Update 5/22/24

Baby Jamir is doing great! We should be home really really soon! He’s going home on feeding tube but nonetheless he’s going home .

The Metayer Family
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