The Andrusier family

Scroll down to see updates as the Mann family progresses in their CDH Journey! (All updates are written and given by parents with consent)

Initial Backstory

Our CDH journey began at our 21 week anatomy scan when we learned our baby had congenital diaphragmatic hernia. What started as a routine appointment quickly turned into a life changing moment for our family filled with specialist appointments, additional scans, difficult conversations, and many unknowns. As we prepare for delivery and an expected NICU stay away from home, we are trying to navigate all of the practical and emotional challenges ahead while also caring for our daughter and preparing for this new chapter. Between relocation for medical care, transportation, meals, childcare, and time away from work, we know this journey will place a strain on our family. Despite the fear and uncertainty, we are holding onto hope and doing everything we can for our baby. This grant would help us be more at ease and allow us to focus more fully on our baby and family during this challenging time.

Update 6/2/2026

"Since my last update, our son was born this week. He has been in the NICU receiving specialized care and recently underwent surgical repair. Thankfully, the surgery went well, and he is currently recovering. While we are grateful for how far he has come, he remains hospitalized and requires ongoing monitoring, treatment, and support as he recovers. This has been an emotional and challenging time for our family, but we are thankful for the excellent medical care he is receiving. We are also incredibly grateful for the Eden Grant. It has truly been so helpful during this difficult time and has helped ease some of the financial stress that comes with having a child in the NICU. We deeply appreciate your generosity and support, which has allowed us to focus more fully on our son’s care and recovery."