The Hensley Family

Scroll down to see updates as the Hensley family progresses in their CDH Journey! (All updates are written and given by parents with consent)

Update 7/29/24

We are the Hensley family, unfortunately, this is our second go around with this CDH rollercoaster. Our oldest boy and youngest boy both have the defect. We are still currently in NICU and this grant is going to help take some of the financial burden off of us and to have toward food and transportation.We are extremely grateful for your help!

Update 8/28/24

Since the last update, we have been transferred to CHOP for a team that specializes in PVS ( another condition that was found our CDHer had on follow up echo).   They also specialize in CDH here too.  We have since been extubated and going up on feeds and weaning sedation.   Slowly getting there.  Slow and steady wins the race is what we are told.  Your donation has helped my family be able to go back and forth a six hour round trip instead of the three we were used to in Baltimore.  Thank you so much! 

Update 9/24/24

Reston is making big strides this month.   He’s coming down on respiratory support, weaning meds, and gaining weight.   He is currently sick with the Rhinovirus, but he’s doing well.   We are almost four months in the NICU and still gotta little ways to go but we are getting there!!   

At this point the funds are being used towards bills to be able to keep me here until we can go home.   Thank you so much and God Bless! 

Update 10/24/24

Reston is doing great and hoping to be able to go home soon.  Still will need a lot of follow ups at John Hopkins and CHOP but he’ll at least be home.  We will be going home on a GJ tube.  Hoping we can keep him from getting sick!!