The Roberts Family

Scroll down to see updates as the Roberts family progresses in their CDH Journey! (All updates are written and given by parents with consent)

Update 12/3/24

My name is Mackenzie, I’m 19. I’m from West Palm Beach, Florida. I have relocated to St. Pete, FL My baby Millie was diagnosed with CDH at 18 weeks. I was devastated. I started to do my research to get an idea of how things are with a CDH baby, & very quickly I learned that there was much more to it then just a “hole in the diaphragm”. I’m here in St. Pete with my mother who is a retired pediatric nurse, who has helped me understand and support me through this time. Millie not only has CDH, but also has heart complications. This grant will be used for financial expenses.