
The Taborsky Family
Baby Thea
Scroll down to see updates as the Taborsky family progresses in their CDH Journey! (All updates are written and given by parents with consent)
Update 5/2/24
Our family consists of myself (Lauren), my husband Chris, and our 23 month old daughter, Hazel. We were so excited to learn we were pregnant with another baby girl, but at our 20 week anatomy scan we found out that our baby was diagnosed with CDH. After some research, we ended up consulting at Memorial Hermann hospital in Houston TX where it was determined that our baby was classified as severe LCDH with an estimated 4-5 month NICU stay. Given our baby's severity and the incredible team we met with in Houston that has a CDH dedicated center, we decided to relocate from Georgetown to Houston TX, 3 hours away, to give our daughter the best chance. These funds will be extremely helpful for our family to be used towards relocation expenses, including housing and hospital parking, so that we can be close to our little girl during her time in the NICU while we continue to pay our mortgage back home.
Our CDH girl, Theodora Taborsky, was born on 4/30/24. She was doing fantastic until about 24 hours after arriving, where her oxygen levels dropped rapidly so they decided to put her onto ECMO. We are so grateful for this organization for allowing us the ability to relocate and give our daughter a fighting chance.
Update 5/8/24
Also wanted to share a happy update on Thea. After only 5 days, she was taken off of ECMO. She has been doing great and had breast milk for the first time through her feeding tube yesterday!
Update 5/29/24
Thea has had a very eventful month! She has moved from a breathing tube to CPAP to high flow oxygen and is now on low flow oxygen. She started bottle feedings once she moved to high flow oxygen and has been making steady progress since, she even breastfed for the first time this past week! Feeding is the last big hurdle for Thea and we are all just having her set the pace but we are hopeful we are getting closer to getting discharged and being able to go home as a family soon.
Update 6/26/24
I am happy to share that Thea was discharged from the hospital this month after 41 days! She came home without any oxygen support and is taking full bottle feeds and doing great with breastfeeding as well. We are so thankful for the Eden Calhoun Fund for helping us during this journey with numerous expenses associated with relocating away from home. We are so excited to have our family all together!
