The Valenti Family

Scroll down to see updates as the Valenti family progresses in their CDH Journey! (All updates are written and given by parents with consent)

Initial Backstory

"We will provide pictures of the baby too in the next couple days. We are from North Carolina and found out our daughter had cdh at our 20 week anatomy scan. Our local hospital told us there was nothing they could do so we were referred to duke in North Carolina. They also told us that there was little to nothing they could do because of the type of cdh she has. So after some research we reached out to John Hopkins in St. Petersburg and Jackie was super helpful and we relocated at 34 week and have been staying at the Ronald McDonald house. She is getting induced today on 1/6!"

Update 3/1/2026

"She is off the ventilator and we are starting to feed her so we are hoping she is able to eat and not have a ng tube"