The Wilson Family

Scroll down to see updates as the Wilson family progresses in their CDH Journey! (All updates are written and given by parents with consent)

Update 11/10/24

Hello, we’re the Wilson family! We were married in 2022 and not long after we decided to start our family. After trying for quite some time and feeling discouraged that something might be wrong, we found out in April of 2024 that we were expecting our first little one. After all of our time trying, we felt it was meant to be! My pregnancy has been anything but easy. Experiencing and being diagnosed early on with HG, I have spent the majority of my days since being 5 weeks pregnant sick in bed. It’s been hard but I kept telling myself that it will all be worth it in the end. It was during our anatomy scan at 22 weeks that they found something wrong. Our son’s heart was on the right side of his body rather than the left. At the time my doctor wasn’t concerned about this but sent me to MFM to get a better look. Two weeks later at MFM they shared with us that our son had moderate LCDH, and all that would entail. I felt somewhat numb being told this news after how hard everything has already been, now adding this. We were then referred to the fetal center in Houston to get further testing and discuss whether a FETO procedure would be an option. Everything happened so quickly, within about a week we were in Houston and meeting with doctors back to back over the course of three days. We did not end up qualifying for the FETO procedure, but we were able to talk in detail with the CDH team about our son’s prognosis and what it would look like to relocate from Wylie Tx to Houston Tx for our care. We felt so much peace with the team here in Houston that we made the decision to relocate at 32 weeks. We’re now 34 weeks just awaiting our son’s arrival in December. We feel so blessed to have so many resources available to us. The Eden Calhoun grant has helped make it possible for us to make the big move and get the best care possible for our son. 

Update 11/25/24

Mom and baby are doing well, everything is holding steady in all of our scans and the doctors have had positive things to say about the growth of Forrest’s lungs and his heart! We got to have some visitors this weekend which was so helpful and encouraging when you’re so far from home, especially near the holidays! We also visited the Houston zoo and enjoyed the nice weather. Now we’re just two weeks out from our induction date and we couldn’t be more excited to meet our little guy! We’re praying for a safe and smooth delivery and the best case scenario for Forrest’s health.